Pearls and Dreams
For me ... I don't take the plaquenil ... because of the myasthenia gravis, the rheumatologist said that he would not use plaquenil in the absence of clear organ invovlement, and severe sunburn with 'funky rash' one time is not enough to justify the MG risk of plaquenil.
I take 5 mgs of prednisone.
Either Celebrex or Bextra
and the Cellcept I take for the Myasthenia is also for the lupus. (that's handy huh?)
For my next posting about the medical stuff I face ...
I can post about ...
my kids and tourette's syndrome, OCD, ADHD or Hypogammagobulinemia (genetic immune deficiency)
or I can post more about the eating disorder
or I can post about my husbands battle with polio and post polio ...
I think I've learned that educating others, is one way I cope, if I can help someone learn about it, so that when they meet someone, or find out they have a loved one with it, they better understand the disease/condition themselves, and thus, have more empathy.