Dr. Suess

"And will you succeed? Yes indeed! Yes indeed! Ninety Eight and Three Quarters guarenteed!"

Tuesday, December 21, 2010


Apparently my neurologist and I have dramatically different ideas of what remission and partial remission are.

To ME ..remission is 100% symptom free without the aid of medication
To ME partial remission is 100% symptom free with the aid of medication.

Active disease on a regular basis is not remission.

Dramatic improvement to have full days ... even several days a week ...without symptoms ...
But as long as I'm having a couple of days a week where symptoms exist, I'm not sure I consider that a partial remission ...

Well Controlled
Not Brittle

but not remission

My neurologist, today, used the phrase 'partial remission' to describe my current state.
He emphasized the word 'partial'

When I said I still have symptoms, most days, although certainly not every day and the fatigue I deal with is more of a lupus fatigue than MG fatigue (yes, they are distinctly different and I have made enough progress to know the difference)

he responded with "yes, but unless you take a dangerous medication, ignore an infection or run yourself into the ground, you're not in danger of myasthenic crisis any longer. You don't have to worry about crisis coming up to bite you on the ass as it's done in the past."

he had a medical student with him and I chose to not remind him that most of my crisis' came on the heels of dramatic/fast weight loss due to severe restrictive behavior related to my eating disorder ...

I guess what I'm trying to decide is ... is this a difference of perspective? A difference of opinion? Is it medically significant?

He recognizes that I have symptoms on a regular basis and still need medication.
He recognizes that things are still difficult
He emphasized the word partial
He emphasized that my own behavior controls much of the symptoms (and oddly enough, it does. I do not have symptoms on days I don't do much unless I'm not doing much because I'm in a flare)
He made it clear that he knows it is medication related and therefore I need to be medically treated as if the disease were 'active'.

So, does it matter, in the long run, if I think partial remission is symptom free and he thinks it's well controlled?

Thursday, December 09, 2010

Drive By Posting

My semester is done ... it's been a nightmare of a semester. Not the one bad class I normally have, but 2 bad classes.

I felt the entire semester like I was caving under the stress ... and managed to pull out A's ... Sensory and Perception (one I had no idea what I was getting because he'd not returned 2 tests!) I got 913 out of 900
Abnormal Psych I got 609 out of 600
and Intro to Counseling I got 298 out of 300

Thank Goodness for Extra Credit!!
Extra Credit made a lot of difference and had i not gotten full credit on my big paper or my portfolio, I'd have been skimping the edge of the 90% range
I still don't know about algebra ... sigh.