Pearls and Dreams
I have spent the night not sleeping. I woke up around 3. Spent a silly half hour on IM with Wanda. Then started to do research for my friend Teresa on her baby. I've promised to find her survivor stories.
I found her one the night I promised. While we were talking I found it.
I've looked. I've poured through about every site I can find since then.
I'm getting discouraged. My heart is breaking and obviously I can't tell her that.
I don't think it helps that Baby Kylie had a bad day yesterday. The nurse, PA, and neurosurgeon all said it was a normal post surgical problem ...and given where it is in the surgical wound, it's ok, the rest of the surgical wound looks great (even by her Mamma's report).
Because the surgical site goes into the bend in the neck, it doesn't heal as fast as the part supported by the skull ... and well ...some spinal fluid leaked out yesterday.
They had to do a spinal tap on poor baby. They needed to do one anyway as part of the cancer studies ..but still.
She had a miserably rough day. Teresa called me twice. It's been a week since Teresa called me twice in one day.
The other thing I've been researching is my own Mamma.
Nothing to do today but to rest ... tomorrow is church only and the men in my family going fishing overnight.
Actually, this month ... except for doctor appointments and getting ready for the house and my church stuff on Wednesdays and Sundays... my schedule is remarkably light.
Ok ...so this week I have Pulmo on Monday, Psychiatrist on Tuesday (anyone wanna go for me? I made the mistake of actually writing him a letter last week!!!)the urologist on thursday and endocrinologist on Friday.
hmmmm the breast surgeon never called back to reschedule mammo and appt. Need to do that. Someone remind me next week cause I WILL forget, then when I go back to PCP in 3 months get into trouble for it. She wasn't happy today that I hadn't seen her on Monday. (well, she wasn't there ...not my fault! I scheduled it 6 months ago! THEY cancelled it 2 weeks ago!)