Dr. Suess

"And will you succeed? Yes indeed! Yes indeed! Ninety Eight and Three Quarters guarenteed!"


Thursday, July 20, 2006

Pearls and Dreams

Pearls and Dreams

6daybig

Just for an FYI ...

Heat and myasthenia gravis don't get along.
Heat and Lupus don't get along.
Heat and migraines don't get along.
Heat and mobile homes that are falling apart don't get along.

Pk's body ... needs a break.

This is the last summer I have to live in a mobile home without adequate insulation ... and window units that won't cool down the house. Next year, I'll be in my well insulated home. :D

This year however, it's sucks!
A/C's going full blast and still over 90 inside the house ...and shortness of breath prevails.

Wednesday, July 19, 2006

Blogging Against Child Abuse

Pearls and Dreams

The Second Edition of Blogging Against Child Abuse is up at Survivors Can Thrive.

Please go check out the stories of those who bravely shared their stories of survival.

Tuesday, July 18, 2006

BA meeting! Back to the Beach!

Pearls and Dreams

Yea Man!! Surf's up DUDE !!!!!!!

TJ is hostessing the BA meeting in Havaii ...

she even arranged for dinner! Dr. A brought the first round of drinks!!

Monday, July 17, 2006

Blog Carnival Against Child Abuse

Pearls and Dreams

This is a posting for the blog carnival against child abuse. The names have been changed to psuedonymns to protect the innocent ... The story, is 100% true.

Shortly after my step dad died, my mom transferred me to the private Christian school. (which, to this day remains in my memory as my favorite school memories)I finished the 8th grade year there, and would stay there through half my Junior year, when we moved out of the state to where I am living now.

My freshman year, I joined the choir. As a choir member, we had the opportunity to sing solo's, duets, trio's ensamble's etc for chapel services on Wednesday. Sometimes we asked, sometimes we were asked. The first time I did it, I was asked to do it. I'm not sure I'd have ever done it a second time if not having been asked the first.

I was given a date to get ready, and given a list of the girls who could play piano for me. I went to one of the girls, she was a 7th grader. She and I practiced when we had time, but since she was in the Junior high, and I was in the high school, our schedules didn't often allow for time. She invited me over to her house to practice. We found that we hit it off as friends, as well as musically. So she suggested coming for dinner, too.

The next day, I brought a change of clothes. Our dress code for school was dresses. It was still warm, so we wanted to be comfortable after school. At Pianists house, I changed into shorts and a tank top. It was a good thing too, her house was HOT! She said her dad tends to keep it that way, and she dresses in shorts year round to keep from getting sick. She didn't seen happy about it.

I met her parents. Her mom, was shaking. Pianist told me her mom had a disease that made her do that. Her Dad came in to meet me. It kind of surprised me that her Dad was home in the middle of the day. She told me that he was a pastor of a small Baptist church. His office was in their basement. She told him why I was there, and we went into her room to change.

Her parents were much older than I'd expected and I found out that she and her brother had been adopted. Her mom had been sick for quite a while. I never knew her life was so rough. She always seemed like such a happy go lucky person. Things here at her house seemed so much 'darker' than what she ever let onto them being.

We went out to the piano to practice my song. We practiced, and practiced. After a while, her father walked back up stairs to tell us that it was sounding good. He said that "I surrender All" was one of his favorite songs. I told him it was my favorite. He put his arm around me and said "I knew I liked you!"

His arm went too far around my shoulder. His fingers slipped under my tank top and onto my breast. I moved quickly and assumed it was an accident. Totally embarrassed ... there was no way I could tell Pianist that her father had touched me ... at that time ... I thought his arm was just too long ...

After dinner we sat down to watch TV ... and he came to sit by Pianist and I. He sat down next to me. His hand landed on my leg, and my knee and he squeezed my knee. It was the first time in my life I felt sickened by the touch of a man ...or the touch of a father ..or a friends father scared me.

But he was a pastor! How could this be? He was a husband! He was a father! He was a PASTOR!

I was at Pianists house. I'm not sure the reason I'd gone over there. We'd become such great friends ... it could have been to practice a song, to hang out together or just about any reason. As uncomfortable as I was over at her house. She often begged me to come to her house.

My house was empty ... my sister had gone off to college, and my Daddy had died, my mom was emotionally unavailable, and often physically gone because of her job. As long as Pianists dad wasn't around, Pianist and I had an absolute blast together.

We were in her bedroom talking, laughing and having fun. Her Dad stuck his head in the door and said that if she and I made dinner, I could stay for dinner. No problem!

A little while later, we went into the living room to watch TV before time to fix dinner. Pianist was on one chair, and I was on the couch. We were watching cartoons and laughing at how silly it was for 2 teenaged girls to watch cartoons. Her dad came and sat down next to me. I wanted to move, but didn't know how to do it without making it obvious.

He put his hand on my knee, and squeezed, ... and he started to talk about how difficult it was to be a pastor with a disabled wife. He asked me if I knew the responsibilities that a pastor had, how much that weighed on the shoulders of a man.

I didn't say much, I just kind of shrugged my shoulders.

Then he'd tell me that most pastors have a wife who is there to support them, emotionally, physically and spiritually, but his wife is too sick to do any of that.She is so sick, that often, she's not even able to support herself ..so he has to carry her burden as well as his. He put his arm around me, and touched me on the right breast and said
"Can you imagine, how difficult it is for a pastor to have a disabled wife?"

Pianist was watching the TV, I honestly don't know if she didn't hear what was going on, or if she was purposely trying to ignore it because of her own fears and embarrassments.

When it came time, we went into the kitchen to fix dinner. We were having so much fun. We were laughing, and messing around. Boy were we going to have a mess to clean up after dinner!!

Suddenly, Pianist got quiet. Her dad had walked in. He walked up to her and said "You guys seem to be enjoying yourselves. We should have you two cook more often!" She breathed a bit.

I was at the sink, he came up behind me, and squeezed my shoulders, I could feel that he had an errection and he whispered in my ear. "You don't know how difficult it is for a pastor to have a disabled wife"

He left the kitchen, and Pianist and I quietly started to go back to finishing getting dinner together ... her mom came to the table to eat. She normally was very glad to see me. Tonight, she seemed very annoyed with both Pianist and I.

Monday Morning

It's monday morning and I'm alone :D. Something that is on short supply this summer. The neighborhood kids are not the type the boys like to hang around with, or, are allowed to hang around with ...so, they're inside most of the time.

Don has gone to 3 days of testing with Vocational Rehabilitation ... to see what they recommend for job training if he goes back to college.

I have mixed feelings. I think his dreams are outreaching his health ...and he's not the most determined person to make sure things get done ... procrastination is his middle name. How much of the procrastination is character, and how much is not feeling well all the time, is hard to tell.

So, the boys stayed up late last night, will sleep in late this morning ..and I get peace and quiet ..for a little while anyway.

Friday, July 14, 2006

not a positive post

Pearls and Dreams

I was informed that I haven't really blogged, other than my bits and spits ... in a few days.

I've had quite the week ..and not real sure where my brain is. Hard to blog when your brain is missing.

I saw my therapist last week and we talked about my body image issues ...she wants to really dig into them. So, Tuesday, I saw my psychiatrist, and HE DID dig into them.

I wasn't really happy with the results, regardless of how accurate it was. Their solution for me fixing the issues wasn't exactly on my top 10 list of doing either.

My psychiatrist says that I want to be invisible ... and that my loosing weight and gaining weight with the eating disorder is largely tied into that. As much as I hate being overweight ... as much as it upsets me ... being visible upsets me more. As I loose weight, and get down to about where I am now ... people start to make remarks ...how good I look ..and some not so generalized remarks.
As I get down about 20 to 30 lbs lower, the remarks really start ... and the terms become more sexualized ..and ... I freak out ...and wind up gaining ... climbing right back over 250 lbs to 285 lbs...where I can stay invisible to society.

Usually ..the weight comes off in 80 to 100 lbs in just a few months. 98 lbs in 4 months put me in myasthenic crisis and in ICU ... hospitalized for 17 days ... and no one figured out it was my own starving myself that did it (even though I refused to eat in the hospital).

This time ...the weight has been much slower ... 60 lbs in 21 months. Slow steady ..and even ...and I thought my brain would wrap around it, but it hasn't. In my mind, I'm still the almost 300 lbs person I was 2 years ago. What alarmed me in the conversation with my psychiatrist ... is that maybe the prednisone that I was put on in crisis' after a massive weight loss didn't have as much to do with the weight gain ..as the panic over the comments I'd get ...

I'm certainly not liking them now. My ideal would be ...loose the weight ..and no one notice. Invisible. Like the blog world .. see my heart, not my body.

Let me get healthy and not sexualize it ..please. But, it seems like that's what we live in, even in a Christian environment ..because, christians are sexual beings too,even when they don't want to admit it (or there would be no children).

Top that conversation off (yes, I did end that abruptly) I saw my urologist ...who is talking about my probably needing to go to Intermittent Self-Catheterization. Ok, so he said it was going to be necessary ... his preference would be now. I think he backed off yesterday because I almost fainted (literally) when he mentioned it. I must have gone awfully pale because he said we'd discuss it at the next appointment. I got pretty dizzy and the world was spinning around me ... I wasn't prepared for that ...
I kind of knew he'd be thinking about another surgery, and he is ... I just didn't expect it to be both surgery and THIS.

For the record ... I hate having lupus and myasthenia. I hate having a whacked out body image and eating disorder ... I hate eating (hmmm does that make sense following the previous statement) ... and in short ... I wish I was healthy and a healthy weight ... then ... I don't know.

Sorry for the downer of a post ... maybe now that I've gotten it out of my system I can go back to my regular blogging.

testing

test test test 1 2 3

Wednesday, July 12, 2006

Will post later

Pearls and Dreams

I had planned on getting up this morning and posting this really neat, profound (In my opinion lol) post. Eye catching and ... well ...

I went to bed last night at a reasonable time ... like 11 pm. I woke up to go work out at 8:30, got up, could not get moving, took my tucas back to bed ...and I woke up at TWO IN THE AFTERNOON!!!!!!!!!!!!!!!!!!!!!!!!!

I guess I was tired.

Last night ... I got the phone call that Kylies final test that was looking for cancer in other parts of her body came back clean.

I'd slept better Monday after seeing her than since she left for OKC. I guess, after getting the final news that the cancer was isolated to that tumor ... I SLEPT.

So, after church tonight, I will try to put my profound post.

Tuesday, July 11, 2006

Pearls and Dreams

Pearls and Dreams

Hear ye Hear ye ... a special installment of Blogger's Anonymous is conveining at the beach thanks to the special hostessing powers of Neuronursechic

Bring your snacks ..bring your beverages, blankets, beach umbrella's, SUN SCREEN!, and I came up with the topic of a plan to storm blogger's headquarters ... However, the idea for topics is still open.

There is plenty of gingerale for Moof this time.

Monday, July 10, 2006

home

Pearls and Dreams

Kylie girl really DOES look good for a girl who had brain surgery just 12 days ago. She has severely crossed eyes, which makes her kind of lethargic. When they put the glasses on her that help to straighten her eyes ... she definitely cheers up. However, she hates to wear the glasses and only lasts a few minutes.

Teresa is doing remarkably well. She admitted to being tired, worn down. Her soon to be ex husband's family is wearing her out emotionally. They've been a HUGE help with Kylie. Emmense. His grandmother ...one of the most interferring controlling women I've ever met ... has been there and caused so much stress for Teresa it's not funny ... and yet ... she'll spend the night and get up at every slight noise every time the nurses come in ... so Teresa can get a good nights sleep. They make sure that Kylie lacks nothing, and Teresa has what she needs.
Physically, they are making sure that everything possible is done for them. Emotionally, they're tearing her apart.


The trip was a good trip. Ronda and I have not had much time together for about a year and a half. Since her mom got really sick. Her mom died last May (2005).
Then she started teaching for the first time, in August. So, as a first year teacher, it was a rough year.
Her Dad met someone a few months ago, and got married in June. I met her step mom today. She and her Dad are an absolutely DELIGHTFUL couple!!!

I start my work outs again tomorrow. I missed a lot last week from not feeling well. Today from going to see T.

I am tired, but oh so glad I finally got to see my baby girl, both of them ;)


Thunderstorms are rolling through so I should shut down the puter.

Sunday, July 09, 2006

misc.

Pearls and Dreams

So, tomorrow ... a friend and I are taking a girls day out and going to OKC. I'm going to meet her dad and step mom for lunch and going to OU pediatric hospital to see Kylie girl!!!

With my own two little eyes!

Our church reached the goal today ... the fundraising was complete of the funds needed for our church to participate in the Habitat build. :D


Italy beat France ...oh yea!

Emailed the director of the camp and thanked him for the opportunity to serve. He emailed back and said he was looking forward to working with me again on more state events ... SAY WHATWHOSAWHATSIT??????

My pastors wife was laughing at me today ... she said she could see the excitement in me ... she said I was so excited I couldn't stand myself. Yep. It's a good place to be.

I made a joke today at Sunday School about mom forgetting it was Sunday and that was why she wasn't at church.
It evidently wasn't a funny joke. :(
Guess I should have gone and called her.

She said she was too tired anyway. She's going to be giving up a day of work. (good, she shouldn't be driving, but is)

I will see you all after I get back from OKC.

Saturday, July 08, 2006

More house stuffs

Pearls and Dreams

Retractable%20Screen
The screen rolls up into the door so it's not seen. This will be on the mudroom door. Seen below.
Mudroomdoor

Frontscreendoor
Hopefully, this will be our front door.

window

And our thermal windows.

Praying

Pearls and Dreams

I have spent the night not sleeping. I woke up around 3. Spent a silly half hour on IM with Wanda. Then started to do research for my friend Teresa on her baby. I've promised to find her survivor stories.

I found her one the night I promised. While we were talking I found it.

I've looked. I've poured through about every site I can find since then.

I'm getting discouraged. My heart is breaking and obviously I can't tell her that.
I don't think it helps that Baby Kylie had a bad day yesterday. The nurse, PA, and neurosurgeon all said it was a normal post surgical problem ...and given where it is in the surgical wound, it's ok, the rest of the surgical wound looks great (even by her Mamma's report).
Because the surgical site goes into the bend in the neck, it doesn't heal as fast as the part supported by the skull ... and well ...some spinal fluid leaked out yesterday.

They had to do a spinal tap on poor baby. They needed to do one anyway as part of the cancer studies ..but still.

She had a miserably rough day. Teresa called me twice. It's been a week since Teresa called me twice in one day.

The other thing I've been researching is my own Mamma.

rough night.

Nothing to do today but to rest ... tomorrow is church only and the men in my family going fishing overnight.

Actually, this month ... except for doctor appointments and getting ready for the house and my church stuff on Wednesdays and Sundays... my schedule is remarkably light.

Ok ...so this week I have Pulmo on Monday, Psychiatrist on Tuesday (anyone wanna go for me? I made the mistake of actually writing him a letter last week!!!)the urologist on thursday and endocrinologist on Friday.

hmmmm the breast surgeon never called back to reschedule mammo and appt. Need to do that. Someone remind me next week cause I WILL forget, then when I go back to PCP in 3 months get into trouble for it. She wasn't happy today that I hadn't seen her on Monday. (well, she wasn't there ...not my fault! I scheduled it 6 months ago! THEY cancelled it 2 weeks ago!)

Friday, July 07, 2006

Floor tile possible choice

Pearls and Dreams

this is very similar to what we're thinking on floor tile. It's very white marble looking. Which is neat looking next to the dark marble looking countertop.

kitchenfloorchoice1

I saw the whole countertop at Lowes today ... AWESOME! I have a chip to carry around with me. TOOO COOL.

I'm also looking at welcome mats :D I'm going to see if I can find the ones I like at Lowes and post them. When I do, they'll be in place of this paragraph.

Wednesday, July 05, 2006

Tagged

Pearls and Dreams
Four jobs I have had in my life:
Waitress
Grocery store clerk
Daycare teacher
Market Research Interviewer


Four movies I would watch over and over:
Muppets Take Manhattan
Chronicals of Narnia : The Lion The Witch and the Wardrobe
Beauty and the Beast (Disney)
Gone with the Wind


Four places I have lived:
Orange County
Mariposa bushes in Mariposa
Pueblo
Tulsa

Four TV shows I love/loved to watch:
CSI
M*A*S*H
Numbers
House

Four places I have been on vacation:
Yosemite yosemite
Oregon
Minnesota
Colorado


Four websites I look at daily
Crosswalk.com
http://www.kotv.com/
http://www.habitat-tulsa.org/where.shtml (I keep checking here to see if our house is on there with a date to start building yet)
www.kxoj.com

People I'll Tag
hmmmmm if you're interested ... go for it!

Monday, July 03, 2006

Friends Baby

Pearls and Dreams

Kylie girl has a tumor called an AT/RT tumor. It is cancer. It is not good. This is from Saint Jude's ...

Disease Information
Brain Tumor: Atypical Teratoid / Rhabdoid Tumor (ATRT)
Alternative Names: ATRT

Definition

This rare, high-grade tumor occurs most commonly in children younger than 2. It is generally found in the cerebellum, which is the lower, back part of the brain that controls balance. These tumors tend to be aggressive and frequently spread through the central nervous system.


Incidence


This diagnosis has been classified only in the last three to five years; the tumor is a subset of medulloblastomas. They occur in about 1-2 percent of children with brain tumors.


Survival Rates

Even after surgery and chemotherapy treatment, the survival rate for children younger than 3 at diagnosis is less than 10 percent. It appears that older children, when treated with chemotherapy and radiation therapy after surgery, do somewhat better long-term, nearing 70 percent.


Treatment Strategies

Treatment generally involves surgical removal of the tumor followed by chemotherapy. Radiation therapy may be considered depending on the age of the child and whether the tumor has recurred.


Current Research

Researchers are investigating new, more effective methods of treating brain tumors of infants and young children. High doses of radiation can’t be used because it may cause permanent problems with thinking, learning, and growing when given to very young children. It has been standard therapy to administer chemotherapy in an attempt to delay giving radiation therapy until the child is older and thus giving the brain more time to develop. However, chemotherapy alone has not been effective in fighting brain tumors.

New radiation techniques that minimize damage to healthy tissue that surrounds brain tumor tissue are under investigation.

Stem cell transplantation as a part of treatment continues to be under study.

Scientists continue to study chromosomal abnormalities, genes, and proteins that may have a role in the development and metastasis (spread to other parts of the central nervous system) of pediatric brain tumors.

Clinical trials are underway to develop chemotherapy drugs effective against this tumor.

Smile

Pearls and Dreams

At camp, I had more than one adult walk up to me and tell me what a priviledge it was to watch my sons and I interact. They'd been to summer camp with my kids for several years,and they knew I had good kids. Seeing us together, they understood why.

It was a real kick to hear the compliments, both on their character, and on us as a family.

Then today, I'm laying down in my bedroom resting and my 16 year old comes barging into my room and says "I love you mom".
With all the sincerity he has. There was no "I need something" behind it.

Touched, I wanted to know what brought it on, not that he doesn't tell me he loves me ... he does, daily. It's just, in the middle of the afternoon, out of the blue ..and SO lovingly ???

So

He says he was watching TV. Just a stupid show. One that kids have said ... I wish my parents are like that ... etc etc. One of those shows that adults like to remind teenagers that life isn't really like that.

Something happened on the show between the parents and the 16 year old son. My son wasn't impressed, again by the way the parents responded.

So he came into the room to tell me how much he loved me and was glad I'm his mom.

You know ... I'm glad he's my son too.

Saturday, July 01, 2006

Freedom

Pearls and Dreams

If Freedom Was Lost
by Peggikaye Eagler

It's the little things
That make this country great,
The ability to walk freely
As we travel from state to state.


The things we take for granted,
Men gave their lives with pride.
We stand attention and pledge,
Taking our liberties in stride.


What would we do
If our freedom was lost?
Would we stand and fight
Knowing our lives are the cost?


When we look at the flag,
And sing our songs loud,
Do we realize the honor
To sing and stand proud?


We argue and fight each other,
Who's rights are trampled today?
Our lives so full of freedoms,
We forget the need to pray.


Is our country the same,
If God we set aside?
Can we have true freedom,
Dependent on American Pride?


To the flag we pledge,
Our commitment and strength.
But it's our faith in God,
That gives the country it's life's length!


© Peggikaye Eagler

Pictures of Home

Pearls and Dreams

PICT0015

PICT0016

Pearls and Dreams

Pearls and Dreams

Peggikaye --

[noun]:

A person with a sixth sense for detecting the presence of goblins



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