It's been 42 days since Don first went into the hospital. That's 6 weeks.
He was taken by ambulance to the ER, then admitted to the med/surg floor (7 tower) from there, he was moved to the ICU, from there, he was moved back to the med/surg floor, 7 tower again. Then he was moved to 9 tower when they closed 7 Tower down for remodeling. Then, he was moved to the Long Term Acute Care facility (L Tac) where he spent longer than I can remember ... and from there, to rehab.
We have a discharge date. Friday! July 6th. Our Independence Day!
Everyone keeps asking me if I'm ready ... will I be ready. Uh ... YES!!!!!!
Yea, I know caretaking at home will bring a whole new set of issues, but he will be here ... and I will wake up in the morning and see HIM, and I can walk into another room and see him .... and we will talk, and laugh and cry and argue at will ... and there will be no miles ... or phones ...
I can't wait to see him sitting on the couch ... with the kitty cats in his lap, just sitting there watching a show I have no interest in while he bugs me about spending time talking to my invisible friends on the internet ... and we smile, just because we're together ... our family, all in the same room. Changed forever by the last 6 weeks ... but still, together.
Dr. Suess
"And will you succeed? Yes indeed! Yes indeed! Ninety Eight and Three Quarters guarenteed!"
Showing posts with label update. Show all posts
Showing posts with label update. Show all posts
Tuesday, July 03, 2007
Monday, June 25, 2007
not much today
Nothing much to update today,
I tried to wake up this morning and my body would just not wake up. I was soo drowsy, I just kept falling asleep.
Don called to see when I was coming in, and I told him I couldn't seem to wake up, and he and I agreed I would just sleep till I was slept out.
When I finally woke up, I realized that I was sooo hot. I thought I'd turned the a/c off, or the a/c wasn't working. So I went to check the a/c.
Nope, a/c is just fine ...and blowing.
I swallowed ...and realized ...whoops, the throat hurts.
So I took my temperature ...101.2. Crud.
I called the doctor, they called back. Under normal circumstances, they'd make me come in, but given that they'd just stuck me on prednsione dose pack for the lupus/MG flare, and that I've been exposed for the last month to who knows what around the hospital ... and I'm on Cellcept (immunosuppressant) even if it IS a virus, it could go into a secondary bacterial, and Don doesn't need that exposure. So, stay home till I'm fever free for 24 hours ... and take the antibiotics.
*whew* the last thing I wanted was to drag myself to the doctor's right now. 99 times out of 100, I would cringe out of a doctor giving antibiotics without an exam or proof of bacterial infection. This, is the 1 time out of 100 that I was really hoping they'd just go around the standard rule.
Ya know, I *ALMOST* on gut instinct asked for a script of antibiotics when she started me on the high dose prednisone last week. I've never started on high doses of prednisone without getting sick. I thought about it, and said I promise to let you know if I use them. And thought "nah, that's absurd"
On the Don front.
Sigh. He called last night, they'd come in to weigh him ... he's down to 90.4 pounds. He was 98 lbs when he checked in. They have him on a high calorie, high protien diet and he is eating. I guess the physical exercise is pushing him and burning more calories in trying to build his endurance to gain back what he's lost?
The pulmonologist is trying to give his nose a break and seeing what happens when he's off oxygen when he's just laying down without activity. The nurses, the Respiratory therapists and PT's are not impressed. He was at 98 to 100 on oxygen, and just laying down doing nothing dropped to 94.
However, he's had bloody noses for the last 3 or 4 days. So, at least for a couple of days, as long as it stays at 94 ... we're going to give his nose a chance to heal.
So, today, I'm home, much to my husband's dismay ... :( (but you've been coming up not feeling good for the last week!!) trying to get healthy enough to go back up again and not infect him with what ever has invaded my body.
I did make a couple of phone calls to say "he needs company!"
Wow, that was longer than I intended.
I tried to wake up this morning and my body would just not wake up. I was soo drowsy, I just kept falling asleep.
Don called to see when I was coming in, and I told him I couldn't seem to wake up, and he and I agreed I would just sleep till I was slept out.
When I finally woke up, I realized that I was sooo hot. I thought I'd turned the a/c off, or the a/c wasn't working. So I went to check the a/c.
Nope, a/c is just fine ...and blowing.
I swallowed ...and realized ...whoops, the throat hurts.
So I took my temperature ...101.2. Crud.
I called the doctor, they called back. Under normal circumstances, they'd make me come in, but given that they'd just stuck me on prednsione dose pack for the lupus/MG flare, and that I've been exposed for the last month to who knows what around the hospital ... and I'm on Cellcept (immunosuppressant) even if it IS a virus, it could go into a secondary bacterial, and Don doesn't need that exposure. So, stay home till I'm fever free for 24 hours ... and take the antibiotics.
*whew* the last thing I wanted was to drag myself to the doctor's right now. 99 times out of 100, I would cringe out of a doctor giving antibiotics without an exam or proof of bacterial infection. This, is the 1 time out of 100 that I was really hoping they'd just go around the standard rule.
Ya know, I *ALMOST* on gut instinct asked for a script of antibiotics when she started me on the high dose prednisone last week. I've never started on high doses of prednisone without getting sick. I thought about it, and said I promise to let you know if I use them. And thought "nah, that's absurd"
On the Don front.
Sigh. He called last night, they'd come in to weigh him ... he's down to 90.4 pounds. He was 98 lbs when he checked in. They have him on a high calorie, high protien diet and he is eating. I guess the physical exercise is pushing him and burning more calories in trying to build his endurance to gain back what he's lost?
The pulmonologist is trying to give his nose a break and seeing what happens when he's off oxygen when he's just laying down without activity. The nurses, the Respiratory therapists and PT's are not impressed. He was at 98 to 100 on oxygen, and just laying down doing nothing dropped to 94.
However, he's had bloody noses for the last 3 or 4 days. So, at least for a couple of days, as long as it stays at 94 ... we're going to give his nose a chance to heal.
So, today, I'm home, much to my husband's dismay ... :( (but you've been coming up not feeling good for the last week!!) trying to get healthy enough to go back up again and not infect him with what ever has invaded my body.
I did make a couple of phone calls to say "he needs company!"
Wow, that was longer than I intended.
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