Don had an EMG last week. The news was crushing to say the least. They wanted to find out the cause of his pain and numbness since he'd been in the hospital ... and they wanted to find out if maybe there was some carpel or ulner(?) tunnel nerve going on. Maybe some neuralgia.
What they found out was that it was polyneuralgia ...and that the damage was double crushed ... at the neck, the elbow, and the wrist (depending on the nerve).
The nerves are permanently damaged, and decompressing them, will not make a difference. They will not get better.
The doctor, today, was quite discouraged. He said that it frustrated him, because, if it was his brother, he'd be scared, because his scoliosis is 'messed up, really messed up, nightmare messed up'.
This is really the first doctor to talk to us in REAL terms.
We are going to check out a Dr. Lenke in St. Louis. The orthopedic surgeon suggested that we get copies of all his xrays, his MRI's, EMG's all his reports, lung function tests and write him a letter ... and just say "can you help?" So far, Dr. Lenke is the only surgeon we've found that will even approach the type of scoliosis that Don has. (if anyone knows anything about him ... please please please post or email me!!!!!!!!!!!! good or bad ..or indifferent, even if it's just to say, yeah, I've heard of him!)
As for me, I'm exhausted. I've been going to my therapist week after week .. and she looks at me and sighs ... I will have to tell her next week though that ... really, aside from the Don issues ... the other medical stuff we've faced this year ...really aren't that unusual. I'm always tired. I'm always hurting. Nothing new here. I just was getting more rest because Don was doing more ... and helping a lot. So, I'm really not any sicker.
I think my life overwhelms her at times. She's going to have to get over that. I need her help to get beyond my issues ... and to do that, she's going to have to get beyond my current every day crisis' that seem to happen every day. Those have been on going for 18 years ...they seem like a big deal to her ...but for me, they are par for the coarse ... I realize that concerns her ... and that she lives with chronic illness herself ...and that she had a mother with chronic illness ...but ... for me, it's just her times 3 ... so ... big deal ... it's my life, my cards I've been dealt. I need to deal with what's caused the eating disorder ... the day to day junk ..is always going to be there. If she tries to deal with that first ...we'll never get to what's underneath.
The boys started school already last year. My oldest is a Senior, and my baby is a Freshman!!! Geesh ... time flies. It just wasn't that long ago that I took my son to kindergarten at Little Light House and watched him toddle into class with his back pack ... with his big eyes ...and those glasses ... and that huge smile ... and now ... he's in high school! Where, did the time go?