This is for Mary ...
HERSHEY! My chin is not a chew toy!! (as you can see, there is quite a bit of chin for him to chew on!)
Dr. Suess
"And will you succeed? Yes indeed! Yes indeed! Ninety Eight and Three Quarters guarenteed!"
Monday, June 16, 2008
Hershey
This is for Mary ...
HERSHEY! My chin is not a chew toy!! (as you can see, there is quite a bit of chin for him to chew on!)
Sunday, June 15, 2008
Fun With Zippy!
In a day or two, I will have a new arrival in my household.
Zippy, the Lobster will be coming to visit me.
Zippy has been with Ramona in Arkansas, and having quite a lot of fun.
Zippy, isn't just any lobster. He is a LOBSTER.
He's traveling around the world to med bloggers to help raise funds for research for pediatric brain cancer.
As anyone who's read my blog for while knows, this is a particularly close subject to my heart. (posts not in order of Kylie's illness)
Please, please visit this page to donate to Zippy's cause. The Kylie's of this world need you. The people who are left behind, like Tyler and Brenden (her brothers) and her mother Teresa, need you as well. As do her friends.
Zippy, the Lobster will be coming to visit me.
Zippy has been with Ramona in Arkansas, and having quite a lot of fun.
Zippy, isn't just any lobster. He is a LOBSTER.
He's traveling around the world to med bloggers to help raise funds for research for pediatric brain cancer.
As anyone who's read my blog for while knows, this is a particularly close subject to my heart. (posts not in order of Kylie's illness)
Please, please visit this page to donate to Zippy's cause. The Kylie's of this world need you. The people who are left behind, like Tyler and Brenden (her brothers) and her mother Teresa, need you as well. As do her friends.
Friday, June 13, 2008
Cold.
I just wrote a whole post ...and second guessed myself.
I don't do that often ... but occassionally I do.
I want to post about why I'm not in therapy anymore ..and what happened. Each time I go to do it, I stop myself. It wasn't my idea, nor the idea of my therapist, but rather, a rather sudden decision of the eating disorder clinic. Based on the actions of someone no longer involved in my treatment.
I always start to post, because it's such a hot topic to me ..then wonder what would happen to my therapist if something happened because of my post. It wasn't fair that I was removed from her care ...so much so, that in the meeting with the clinic director, herself and me ..she kept using the phrase "Patient abandonment" while he kept shooting her visual darts that if looks could kill, she'd not have survived the hour.
It was such a hot topic that it left me unwilling to see another therapist ..at all.
And yet ... I'm going back to school to become a psychologist. How ironic is that?
Granted, I'm going to do child psychology, not therapy for adults with issues such as eating disorders, PTSD, or any such issues ...but still.
Part of me left the office that day (ironically, April 1) determined that it would be the end of the eating disorder, therefore, it wouldn't matter. How I thought I'd accomplish that feat after years of not being able to, I've no idea. My recent blood test still showed a protein defieciency ... constant cold ..very cold ..docs answer ..nutrition. Stomach pain ... possible scar tissue from gallbladder surgery (having scan on Monday) but most likely caused from not eating enough over last year and a half. (not real sure how that one works ...) Metformin started ... bothers me ..called endo ... answer "increase calories to 1500, then if it still bothers, call back" DAGNABIT! Does everything come down to nutrition with me ..and why can't 800 to 1000 be enough (technically, I know the answer that remains, significantly beside the point.)
So I wonder ... will I ever have the courage to fully write about the events of April 1, 2008 ... or about what is really involved in my eating disorder. The first, I'm not sure I have the *right* to write about on a public blog, the second, I wonder ...maybe I have the responsibility of writing about ..at least some day.
I don't do that often ... but occassionally I do.
I want to post about why I'm not in therapy anymore ..and what happened. Each time I go to do it, I stop myself. It wasn't my idea, nor the idea of my therapist, but rather, a rather sudden decision of the eating disorder clinic. Based on the actions of someone no longer involved in my treatment.
I always start to post, because it's such a hot topic to me ..then wonder what would happen to my therapist if something happened because of my post. It wasn't fair that I was removed from her care ...so much so, that in the meeting with the clinic director, herself and me ..she kept using the phrase "Patient abandonment" while he kept shooting her visual darts that if looks could kill, she'd not have survived the hour.
It was such a hot topic that it left me unwilling to see another therapist ..at all.
And yet ... I'm going back to school to become a psychologist. How ironic is that?
Granted, I'm going to do child psychology, not therapy for adults with issues such as eating disorders, PTSD, or any such issues ...but still.
Part of me left the office that day (ironically, April 1) determined that it would be the end of the eating disorder, therefore, it wouldn't matter. How I thought I'd accomplish that feat after years of not being able to, I've no idea. My recent blood test still showed a protein defieciency ... constant cold ..very cold ..docs answer ..nutrition. Stomach pain ... possible scar tissue from gallbladder surgery (having scan on Monday) but most likely caused from not eating enough over last year and a half. (not real sure how that one works ...) Metformin started ... bothers me ..called endo ... answer "increase calories to 1500, then if it still bothers, call back" DAGNABIT! Does everything come down to nutrition with me ..and why can't 800 to 1000 be enough (technically, I know the answer that remains, significantly beside the point.)
So I wonder ... will I ever have the courage to fully write about the events of April 1, 2008 ... or about what is really involved in my eating disorder. The first, I'm not sure I have the *right* to write about on a public blog, the second, I wonder ...maybe I have the responsibility of writing about ..at least some day.
Monday, June 09, 2008
A Thank You and A Why
Recently, I mentioned that it had been recommended to me to wear an eye patch when I get fatiqued (because of double vision) but that my latex allergy made it difficult to follow through.
Fellow Blogger, and quilter, extraordinaire, Ramona Bates, surprised me by deciding to do something about my problem.
I recieved them last week. I knew that I would use them, but am a little surprised by how much I'm using them. I don't know if I'm just overly tired from over extending myself ...or if the relief they bring is so welcome ... or if they were just that needed. So THANK YOU, Ramona!
Sixteen years ago when I was diagnosed with Myasthenia Gravis, one of the first things they told me was to get an eye patch for the double vision. They also suggested using one to PREVENT double vision.
My neurologist also said that it would decrease overall fatique. I never quite understood that ... but found rather quickly that he was telling the truth.
As I learned about Myasthenia and how muscles work, it started to make more sense to me how and why the eye patches not only help with double vision, preventing it and helping with the fatigue factor.
Myasthenia Gravis is an autoimmune disease that effects the voluntary muscles. If it can be moved, the muscle can be effected. MOST Myasthenics are effected in the eye lids first, then eyes, then it moves down from there.
I was a bit odd, in that my mouth was the first to be effected, my eyes next and then my eye lids came after my whole body was effected. My eyelids are still not all that likely to droop. When they do droop ... I'm in a bit of medical trouble and respiratory issues tend to be right on the heels of my eyelid droop.
There was one time that I was very sick with bronchitis. The doctor wasn't available so I saw a Physicians Assistant that I'd never seen before. He wasn't pleased with my infection, but wasn't really alarmed at my appearance. My husband, wanted him to get my doctor. He kept saying "Look! She's in trouble!"
The PA finally said "She looks like a patient with Myasthenia, she has myasthenia, I don't see the issue."
My husband finally said "PLEASE go tell the doctor what you've just told me."
So he did. The doctor came rushing into the exam room ... to where I got rushed out and admitted into the hospital. He knew that when I LOOKED like a Myasthenic ... I'm in trouble. I wound up with a series of plasmapheresis to pull me out of the crisis.
The double vision I experience, however, is FAR more frequent. Almost daily, if not daily. By anywhere from 7 to 9 pm, I'm getting a bit blurry eyed, by 9 or so, I'm crosseyed. By 11, anyone looking at me can see that my eyes do not track. This, is even on a good day. Get myself tired ...and it happens early ... today ... I woke up with my eyes not tracking. Double vision by about noon. OOPS.
Here is a PDF file from the MGFA That gives coping hints for those with ocular MG (effecting the eyes only. It is usually also given to those with generalized MG.
One of the reasons eyes are so very effected is that, in MG, the more a muscle is used, the weaker it gets. Over use just wears out the muscle. Eyes, almost never get rest ...while awake, they are constantly moving, and changing what they are doing, even subtly. While asleep, they move rapidly during REM ... they simply are a hard working muscle group that the immune system has decided to target.
When double vision happens, you put the eye patch on, and you only are looking out of one eye, which means you are only seeing one image. It allows the covered eye to rest, and to not work as hard. It is VERY important to not keep the eye patch over just one eye, or to wear them all the time or you can actually damage the eye sight. But to give the eyes a break, you can wear one for an hour, then switch it, and the eyes will feel like they've been given a new lease. The facial muslces that help to assist the eyes, stop straining because the eyes don't have to work as hard.
Then because the face is more relaxed, the shoulders and neck tend to not have to work as hard ...and it snow balls into the whole body working more effectively.
It also reminds you to ..um ..er .. take it easy and that you might be a bit beyond your limits if it's too early in the day.
This last friday, I did some deeeeeep cleaning. I got mad at my kids and did 12 loads of THEIR laundry in one day. Then cleaned out my kitchen cabinets, re organizing them. (I get mad, I clean). I also did a few other deep cleaning gems that needed attending to, but could have waited ...or done by teenaged boys.
Then Saturday, I decided that I wanted to try the Butternut squash soup I'd been seeing on Food network ...and I cooked it. It took a good part of the day. I also made a pork shish kabobs. I spent 8 hours total in the kitchen.
I went to pay the Macy's bill ..and found a treat in my car. An abandoned puppy (complete with note! telling me breed and age)!! Which, by the way is Black lab/ Austrailian shephard. She is 8 weeks old. She has stolen our hearts and we've decided to keep her ... so house breaking and playing, and training ensued. Including up in the middle of the night to take her outside. We've named her Hershey.
I thought about making the boys do it, but realized they were leaving for camp on Monday (today) morning ..and figured I might as well do it myself.
Then Sunday, church, where I worked children's ministry and we had a church picnic ... in the sun and heat. Then home to get my kids ready for church camp. Which included a 10 pm run to walmart to get last minute stuff ..and struggling to get them to pack at midnight.
This morning started out at 7 am ... to finish running to get stuff they hadn't remembered they needed and didn't have (bathing suit!) and to get an umbrella because I don't own one ...and well ..housebreaking in the rain.
All that ...and my eyes are in desperate need of those patches!! I asked my son to take a picture of me wearing them. I put on a big smile and then took them to camp. Finally got them opened and was shocked to see ... my smile! Where is it???
MG strikes again!
So, while I look like I'm not smiling ... I am, it's an MG thing. The muscles are worn out.
Here is a picture of me back in February with a friend. I wasn't as tired, and you can see the difference in my smile
June is Myasthenia Gravis Awareness Month. Famous Myasthenics are Aristotle Onasis and Roger Smith (Ann Margaret's husband). There is also a soap opera actress who has it, as well as her character, but I never can remember who. There have been a couple of football coaches with it ..and a couple of years ago, a college football player found out he had it mid season!
So, now that I've posted ...and kids are tucked away in southern oklahoma at camp .. and Hershey is having fun with Don ... I think, I will tuck myself into bed. Thank you, again Ramona!
Fellow Blogger, and quilter, extraordinaire, Ramona Bates, surprised me by deciding to do something about my problem.
I recieved them last week. I knew that I would use them, but am a little surprised by how much I'm using them. I don't know if I'm just overly tired from over extending myself ...or if the relief they bring is so welcome ... or if they were just that needed. So THANK YOU, Ramona!
Sixteen years ago when I was diagnosed with Myasthenia Gravis, one of the first things they told me was to get an eye patch for the double vision. They also suggested using one to PREVENT double vision.
My neurologist also said that it would decrease overall fatique. I never quite understood that ... but found rather quickly that he was telling the truth.
As I learned about Myasthenia and how muscles work, it started to make more sense to me how and why the eye patches not only help with double vision, preventing it and helping with the fatigue factor.
Myasthenia Gravis is an autoimmune disease that effects the voluntary muscles. If it can be moved, the muscle can be effected. MOST Myasthenics are effected in the eye lids first, then eyes, then it moves down from there.
I was a bit odd, in that my mouth was the first to be effected, my eyes next and then my eye lids came after my whole body was effected. My eyelids are still not all that likely to droop. When they do droop ... I'm in a bit of medical trouble and respiratory issues tend to be right on the heels of my eyelid droop.
There was one time that I was very sick with bronchitis. The doctor wasn't available so I saw a Physicians Assistant that I'd never seen before. He wasn't pleased with my infection, but wasn't really alarmed at my appearance. My husband, wanted him to get my doctor. He kept saying "Look! She's in trouble!"
The PA finally said "She looks like a patient with Myasthenia, she has myasthenia, I don't see the issue."
My husband finally said "PLEASE go tell the doctor what you've just told me."
So he did. The doctor came rushing into the exam room ... to where I got rushed out and admitted into the hospital. He knew that when I LOOKED like a Myasthenic ... I'm in trouble. I wound up with a series of plasmapheresis to pull me out of the crisis.
The double vision I experience, however, is FAR more frequent. Almost daily, if not daily. By anywhere from 7 to 9 pm, I'm getting a bit blurry eyed, by 9 or so, I'm crosseyed. By 11, anyone looking at me can see that my eyes do not track. This, is even on a good day. Get myself tired ...and it happens early ... today ... I woke up with my eyes not tracking. Double vision by about noon. OOPS.
Here is a PDF file from the MGFA That gives coping hints for those with ocular MG (effecting the eyes only. It is usually also given to those with generalized MG.
One of the reasons eyes are so very effected is that, in MG, the more a muscle is used, the weaker it gets. Over use just wears out the muscle. Eyes, almost never get rest ...while awake, they are constantly moving, and changing what they are doing, even subtly. While asleep, they move rapidly during REM ... they simply are a hard working muscle group that the immune system has decided to target.
When double vision happens, you put the eye patch on, and you only are looking out of one eye, which means you are only seeing one image. It allows the covered eye to rest, and to not work as hard. It is VERY important to not keep the eye patch over just one eye, or to wear them all the time or you can actually damage the eye sight. But to give the eyes a break, you can wear one for an hour, then switch it, and the eyes will feel like they've been given a new lease. The facial muslces that help to assist the eyes, stop straining because the eyes don't have to work as hard.
Then because the face is more relaxed, the shoulders and neck tend to not have to work as hard ...and it snow balls into the whole body working more effectively.
It also reminds you to ..um ..er .. take it easy and that you might be a bit beyond your limits if it's too early in the day.
This last friday, I did some deeeeeep cleaning. I got mad at my kids and did 12 loads of THEIR laundry in one day. Then cleaned out my kitchen cabinets, re organizing them. (I get mad, I clean). I also did a few other deep cleaning gems that needed attending to, but could have waited ...or done by teenaged boys.
Then Saturday, I decided that I wanted to try the Butternut squash soup I'd been seeing on Food network ...and I cooked it. It took a good part of the day. I also made a pork shish kabobs. I spent 8 hours total in the kitchen.
I went to pay the Macy's bill ..and found a treat in my car. An abandoned puppy (complete with note! telling me breed and age)!! Which, by the way is Black lab/ Austrailian shephard. She is 8 weeks old. She has stolen our hearts and we've decided to keep her ... so house breaking and playing, and training ensued. Including up in the middle of the night to take her outside. We've named her Hershey.
I thought about making the boys do it, but realized they were leaving for camp on Monday (today) morning ..and figured I might as well do it myself.
Then Sunday, church, where I worked children's ministry and we had a church picnic ... in the sun and heat. Then home to get my kids ready for church camp. Which included a 10 pm run to walmart to get last minute stuff ..and struggling to get them to pack at midnight.
This morning started out at 7 am ... to finish running to get stuff they hadn't remembered they needed and didn't have (bathing suit!) and to get an umbrella because I don't own one ...and well ..housebreaking in the rain.
All that ...and my eyes are in desperate need of those patches!! I asked my son to take a picture of me wearing them. I put on a big smile and then took them to camp. Finally got them opened and was shocked to see ... my smile! Where is it???
MG strikes again!
So, while I look like I'm not smiling ... I am, it's an MG thing. The muscles are worn out.
Here is a picture of me back in February with a friend. I wasn't as tired, and you can see the difference in my smile
June is Myasthenia Gravis Awareness Month. Famous Myasthenics are Aristotle Onasis and Roger Smith (Ann Margaret's husband). There is also a soap opera actress who has it, as well as her character, but I never can remember who. There have been a couple of football coaches with it ..and a couple of years ago, a college football player found out he had it mid season!
So, now that I've posted ...and kids are tucked away in southern oklahoma at camp .. and Hershey is having fun with Don ... I think, I will tuck myself into bed. Thank you, again Ramona!
Tuesday, June 03, 2008
ChronicBabe Goes to Grand Rounds
ChronicBabe is a blogger who blogs about many issues regarding chronic illnesses. I found her initially through Grand Rounds quite a while back. Then we 'befriended' each other on facebook and then on Twitter.
This week, her Grand Rounds entry hit very close to my heart ..even closer than the norm.
When the person who needs the caretaking becomes the caretaker ... I've found myself increasingly in this roll both with my husband and mother.
There is excellent advice in there. I don't always follow it ..some I follow to the letter.
If you are a caretaker this is a must read. If you are a caretaker with a chronic illness ..this is a MUST READ.
If you have a chronic illness ...go take a look around Chronicbabes .. it's a nice time out of the day. Like chocolate on a tough day.
This week, her Grand Rounds entry hit very close to my heart ..even closer than the norm.
When the person who needs the caretaking becomes the caretaker ... I've found myself increasingly in this roll both with my husband and mother.
There is excellent advice in there. I don't always follow it ..some I follow to the letter.
If you are a caretaker this is a must read. If you are a caretaker with a chronic illness ..this is a MUST READ.
If you have a chronic illness ...go take a look around Chronicbabes .. it's a nice time out of the day. Like chocolate on a tough day.
Flocking
This is all Vijay's fault ....
I tried Twittering at his suggestion and I've gotten hooked. Pownce, I think was
Moof's invite ... But Vijay suggested that I try Flock. An innocent suggestion.
So, I go and download it.
What happens? Hook line and sinker ... I'm reeled in like a trout in a feed pond!
It keeps my flickr, my picasa, my youtube, my twitter, my pownce, my blog ... everything at just one place ..it's an internet junkie's crack I tell ya!
the only thing I can't get on it (yet?) is my bloglines and YMX
Go ...look at flock ... it only takes seconds to download (even with my slowest dsl connection!) you'll see! It will keep even the most unorganized person all kept together in a nice little spot!
sigh ... I'm hooked!
I tried Twittering at his suggestion and I've gotten hooked. Pownce, I think was
Moof's invite ... But Vijay suggested that I try Flock. An innocent suggestion.
So, I go and download it.
What happens? Hook line and sinker ... I'm reeled in like a trout in a feed pond!
It keeps my flickr, my picasa, my youtube, my twitter, my pownce, my blog ... everything at just one place ..it's an internet junkie's crack I tell ya!
the only thing I can't get on it (yet?) is my bloglines and YMX
Go ...look at flock ... it only takes seconds to download (even with my slowest dsl connection!) you'll see! It will keep even the most unorganized person all kept together in a nice little spot!
sigh ... I'm hooked!
Monday, June 02, 2008
Twitchy
I have a cat ... he's a beautiful Maine Coon cat ...a bit camera shy, who is determined that we not get a picture of his beautiful tail.
He is also the cat who bit me when I tried to bathe that tail.
The bite itself is the bright red spot, the silver marks is the pen outlining where the infection kept spreading too before it finally started to get better.
Turkey cat.
Anyway ... twitch is all forgiven now.
He is also the cat who bit me when I tried to bathe that tail.
| http://picasaweb.google.com/Peggikaye/OtherStuff/photo#5207155856014117378"> |
| From stuff |
Turkey cat.
Anyway ... twitch is all forgiven now.
Saturday, May 24, 2008
Back!
Ok, I am back.
My computer is totally fixed.
Blog problems and all.
The ramifications, may be longer standing.
Benjamin had let a neighbor into the house to use a photoshop program we have. In doing so, she also visited a few of the favorites
Using the program, was messing with the virtual memory of the computer. So, we had told the boys we couldn't use it until it got properly installed. She'd come over and use it, the virtual memory would be all screwed up, then my blogs would be inacessible to me ... at times, or only partially accessible at other times.
Quite a frustrating week on the computer.
I have on my computer, as well as had told her about. I don't have them saved in a 'secure' space, we share a home address with the family. She accessed one of the blogs I read, got mad at the post, and trolled it anonymously.
She lamblasted the poor girl to bits. What's worse (and somewhat sick) is she took part of my story, and twisted it beyond measure!
Enough of it was there, that I could recognise it. Some I know she's never been told by me (sons? read my blog? husband?) others I know I've told her. Some is stuff I know has happened to her. It is an angry diatribe at this poor girl who was venting on her blog. I still don't know if it came from my IP address or not, but it did come from my area.
The thing that made me first suspect her was the ' surgery to cut my chest wide open' with no reference as to why. The implication being heart surgery like most would have for a transternal operation. (Without the use of the word transternal) Only, mine, was a thymectomy, my heart is fine. It is quite scary realizing I've got a fruitcake living across the street to me. Again. (just realize I had a weird neighbor before, that was almost this bad.
Guess I need to put those skills into place again. She wormed her way into the house while we were gone as well. )
So, my sincerest apologies to EE at BackboardsandBandaids.Blogspot.com
She is a young EMT with plenty of fire, pregnant, and working. She said this didn't bother her, it was 'blog fodder'. It bothered me greatly.
In part, because I feel like I have been violated. It did take me most of the night to realize that was part of the equation. But also, because I don't just read her blog, I talk to her on IM and I play scrabulous with her on facebook. She's not 'just another blogger' to me. I admire what this young girl has done with her life.
For someone to have taken, what is supposed to be 'me' and do what is so out of character for me (as all my blog friends, as well as personal friends could attest to) feels so, what is the word? Foreign? Violated?
I don't have any recourse because my son let her in to use my computer. I did not have access to the pages private (besides, I'd given her a list of my favorite medical blogs! She supposedly has an interest in 'doing something medical' when she gets on her feet.)
EE did a great job of standing up for herself. Her blog friends did a wonderful job of defending her. I admire her greatly for the minute she saw me on IM asking me. (without, mind you, accusing!) We got to the bottom of it rather quickly.
I am left reeling, with flashbacks of the "Tomato" fiasco of a couple years back. If you weren't a part of that, please, just let that one go. If you know, then you'll understand.
Edit: I have a protected, prepaid credit card on Paypal that is used for children's ministry. I decided to check that. It, also is on the favorites page that my blogs are kept on. Sure enough, purchases that I did not make have been made. Walmart. Clothing for a boy and a girl. In young children's sizes. About the sizes her kids would wear. Less than $25 taken off. (which, there is only $50 on the card, to get more than $25, needs the children's pastor's ID as well because it's the church's money). Now I guess I have a real decision to make. This goes beyond a stealing of a reputation.
My computer is totally fixed.
Blog problems and all.
The ramifications, may be longer standing.
Benjamin had let a neighbor into the house to use a photoshop program we have. In doing so, she also visited a few of the favorites
Using the program, was messing with the virtual memory of the computer. So, we had told the boys we couldn't use it until it got properly installed. She'd come over and use it, the virtual memory would be all screwed up, then my blogs would be inacessible to me ... at times, or only partially accessible at other times.
Quite a frustrating week on the computer.
I have on my computer, as well as had told her about. I don't have them saved in a 'secure' space, we share a home address with the family. She accessed one of the blogs I read, got mad at the post, and trolled it anonymously.
She lamblasted the poor girl to bits. What's worse (and somewhat sick) is she took part of my story, and twisted it beyond measure!
Enough of it was there, that I could recognise it. Some I know she's never been told by me (sons? read my blog? husband?) others I know I've told her. Some is stuff I know has happened to her. It is an angry diatribe at this poor girl who was venting on her blog. I still don't know if it came from my IP address or not, but it did come from my area.
The thing that made me first suspect her was the ' surgery to cut my chest wide open' with no reference as to why. The implication being heart surgery like most would have for a transternal operation. (Without the use of the word transternal) Only, mine, was a thymectomy, my heart is fine. It is quite scary realizing I've got a fruitcake living across the street to me. Again. (just realize I had a weird neighbor before, that was almost this bad.
Guess I need to put those skills into place again. She wormed her way into the house while we were gone as well. )
So, my sincerest apologies to EE at BackboardsandBandaids.Blogspot.com
She is a young EMT with plenty of fire, pregnant, and working. She said this didn't bother her, it was 'blog fodder'. It bothered me greatly.
In part, because I feel like I have been violated. It did take me most of the night to realize that was part of the equation. But also, because I don't just read her blog, I talk to her on IM and I play scrabulous with her on facebook. She's not 'just another blogger' to me. I admire what this young girl has done with her life.
For someone to have taken, what is supposed to be 'me' and do what is so out of character for me (as all my blog friends, as well as personal friends could attest to) feels so, what is the word? Foreign? Violated?
I don't have any recourse because my son let her in to use my computer. I did not have access to the pages private (besides, I'd given her a list of my favorite medical blogs! She supposedly has an interest in 'doing something medical' when she gets on her feet.)
EE did a great job of standing up for herself. Her blog friends did a wonderful job of defending her. I admire her greatly for the minute she saw me on IM asking me. (without, mind you, accusing!) We got to the bottom of it rather quickly.
I am left reeling, with flashbacks of the "Tomato" fiasco of a couple years back. If you weren't a part of that, please, just let that one go. If you know, then you'll understand.
Edit: I have a protected, prepaid credit card on Paypal that is used for children's ministry. I decided to check that. It, also is on the favorites page that my blogs are kept on. Sure enough, purchases that I did not make have been made. Walmart. Clothing for a boy and a girl. In young children's sizes. About the sizes her kids would wear. Less than $25 taken off. (which, there is only $50 on the card, to get more than $25, needs the children's pastor's ID as well because it's the church's money). Now I guess I have a real decision to make. This goes beyond a stealing of a reputation.
ஹாய் Vijay
இ அல்வய்ஸ் வாண்டேது டு சதி இன் தி உநிடேது ச்டடேஸ். உண்டில் ஏ பெவ் எஅர்ஸ் அகோ வென் மி பச்டோர் விசிடேது இந்தியா. வென் ஹி திட், இ பெகமே பாசினடேது வித் தி குன்றி அபிடேர் இ இண்டேர்விஎவேது ஹிம் போர் ஒஉர் தேநோமினடிஒன்ஸ் நேஷனல் மகஜினே.
நொவ், இ ரேஅல்லி வான்ட் டு விசிட் இந்தியா, ஈஸ்பெசியால்லி டு விசிட் விஜய் அண்ட் ஹிஸ் பாமிலி. தி எலேப்தன்த்ஸ் வௌல்ட்ன்'த ஹுர்ட்!
நொவ், இ ரேஅல்லி வான்ட் டு விசிட் இந்தியா, ஈஸ்பெசியால்லி டு விசிட் விஜய் அண்ட் ஹிஸ் பாமிலி. தி எலேப்தன்த்ஸ் வௌல்ட்ன்'த ஹுர்ட்!
Tuesday, May 20, 2008
Under Construction
I'm trying to re arrange my blog. Got rid of a couple of things ... and moving others. The count down clock has been removed from the HTML code, but hasn't quite disappeared from the scene yet.
I tried to move it to the bottom, but it wouldn't move, so I tried to remove it. It won't go. I guess it likes my blog.
So, please excuse me and bear with me as things change around a bit. Hopefully it will lead to a little less cluttered feel.
I tried to move it to the bottom, but it wouldn't move, so I tried to remove it. It won't go. I guess it likes my blog.
So, please excuse me and bear with me as things change around a bit. Hopefully it will lead to a little less cluttered feel.
Monday, May 19, 2008
Frustration Station
This year I have been started on several new medications. (As if I wasn't on enough before). They did not replace old medications, they were added to my regimine.
A few years ago, I was sent to a rheumatologist by my PCP with her hoping to get me started on Plaquenil for the lupus. She felt that the drug required more expertise to manage with my complicated medical history than she wanted to manage.
I went to rheumy ... he felt the drug was too risky ... put me on steroids and steroid creams. (Plaquenil is commonly first line drug for Lupus ...add Myasthenia Gravis into the mix, and you've got a different colored horse)
My PCP was frustrated, but she went along with him. I ...the ever faithful patient, listened to the docs and went along.
Fast forward ...rheumy leaves town ... I'm left with no rheumy ..my Dermatologist ALSO leaves town to go teach in Texas ...and I go to a new dermatologist. (after almost 3 years. Not wise, I know, lupus, history of skin cancer. But my former Dermy had been my dermy since SAMUEL was 6 months old. He was 15 when Dermy moved to Texas. I pouted and didn't want to find a new one)
New dermy is not only good with skin cancer, but QUITE experienced with autoimmune diseases that effect the skin. I'm in there with a red butterflied face (which was only kind of pink and only sometimes there when Rheumy was here, thus the willingness to use steroid creams).
New Dermy doesn't like the high steroids and the constant steroid cream to the face. Hind sight, I realize that my skin issues had significantly worsened over time. Rheumy may not have intended for that much steroid cream to be used either. Ooops.
So, anyway ...she starts me on Plaquenil. I'm fine with that. I know that my PCP had wanted that several years ago anyway. Besides, it may lessen the amount of steroid dose packs etc ...
So here I am ... less than 2 months on it and my eyes are driving me nuts. Blurry vision, double vision, tired (eyes) all the time ... my eye glasses have gone from a 1.00 to a 2.00 (drug store version) just to be able to read. I've gone from using the glasses at night when I'm tired, to not being able to read anything without them.
It's a side effect of ... Plaquenil AND Requip (which I started in January at 2 mg)
BUT ... it is also a MAJOR symptom (a primary symptom) of Myasthenia Gravis.
The reading glasses ... I'm 43. At some point, I was going to need reading glasses ... it happens to the best of us. It evidently is a fact of life.
I've also been started on metformin ... the eyes could be an issue related to metformin ... or any of the issues related to why I need metformin.
Oh yeah, my crestor went from 5 mg to 20 mg since November. I have no idea if the eyes can be effected by Crestor or not.
I'm thinking my stomach issues are probably more in reaction to the significant changes in my drug regimine than an ulcer or endometriosis ... as I've thought about it ... Adding all those meds and changing doses in such a short time ...whose stomach would WANT to handle it?
Metformin and Requip are both very hard on tummy.
At some point ...someone has to cry UNCLE and say enough. I think, my body is doing just that. It may be sick and have it's issues, but there are only so many chemical fixes that can be done without causing more issues!
A few years ago, I was sent to a rheumatologist by my PCP with her hoping to get me started on Plaquenil for the lupus. She felt that the drug required more expertise to manage with my complicated medical history than she wanted to manage.
I went to rheumy ... he felt the drug was too risky ... put me on steroids and steroid creams. (Plaquenil is commonly first line drug for Lupus ...add Myasthenia Gravis into the mix, and you've got a different colored horse)
My PCP was frustrated, but she went along with him. I ...the ever faithful patient, listened to the docs and went along.
Fast forward ...rheumy leaves town ... I'm left with no rheumy ..my Dermatologist ALSO leaves town to go teach in Texas ...and I go to a new dermatologist. (after almost 3 years. Not wise, I know, lupus, history of skin cancer. But my former Dermy had been my dermy since SAMUEL was 6 months old. He was 15 when Dermy moved to Texas. I pouted and didn't want to find a new one)
New dermy is not only good with skin cancer, but QUITE experienced with autoimmune diseases that effect the skin. I'm in there with a red butterflied face (which was only kind of pink and only sometimes there when Rheumy was here, thus the willingness to use steroid creams).
New Dermy doesn't like the high steroids and the constant steroid cream to the face. Hind sight, I realize that my skin issues had significantly worsened over time. Rheumy may not have intended for that much steroid cream to be used either. Ooops.
So, anyway ...she starts me on Plaquenil. I'm fine with that. I know that my PCP had wanted that several years ago anyway. Besides, it may lessen the amount of steroid dose packs etc ...
So here I am ... less than 2 months on it and my eyes are driving me nuts. Blurry vision, double vision, tired (eyes) all the time ... my eye glasses have gone from a 1.00 to a 2.00 (drug store version) just to be able to read. I've gone from using the glasses at night when I'm tired, to not being able to read anything without them.
It's a side effect of ... Plaquenil AND Requip (which I started in January at 2 mg)
BUT ... it is also a MAJOR symptom (a primary symptom) of Myasthenia Gravis.
The reading glasses ... I'm 43. At some point, I was going to need reading glasses ... it happens to the best of us. It evidently is a fact of life.
I've also been started on metformin ... the eyes could be an issue related to metformin ... or any of the issues related to why I need metformin.
Oh yeah, my crestor went from 5 mg to 20 mg since November. I have no idea if the eyes can be effected by Crestor or not.
I'm thinking my stomach issues are probably more in reaction to the significant changes in my drug regimine than an ulcer or endometriosis ... as I've thought about it ... Adding all those meds and changing doses in such a short time ...whose stomach would WANT to handle it?
Metformin and Requip are both very hard on tummy.
At some point ...someone has to cry UNCLE and say enough. I think, my body is doing just that. It may be sick and have it's issues, but there are only so many chemical fixes that can be done without causing more issues!
Sunday, May 18, 2008
oops
I've been told I need to check in. Sorry!!!
I've seriously planned on blogging. Really ... I need to. My son graduated from high school. That is worthy of a blog post. It begs of a blog post.
I freak out everytime I go to blog about it!!
Between that ..and the fact that it's been 25 years since I graduated ... I'm feeling just a bit ... um er ..uh ..er ...middle aged!! Ok, so I am, but that *IS* beside the point.
I have an email list of friends that I've had since I joined the WWW in 1998. It is nicknamed TSBS (tourette's syndrome and yes, the BS is exactly that) It is a small group and we are very tight nit. When our children were little, we clung to each other like a spider web. We were each other's life line, sanity, and survival ... we've seen each other through marriage, divorce, affairs, illnesses, deaths of parents, the near deaths of a spouse (mine) and serious illnesses of parents and spouses. We have held each other's hands through IEP's, fights with neighbors, bosses, job losses and life changes ... through it all ... we've been there. For several years, we did a christmas ornament exchange, those, are treasures beyond belief!
We, for several years, just the 15 of us, kept a volume of emails in our group of about 250 emails a day.
As our children have grown and life has settled for most of us (2 of the children still have SIGNIFICANT Tourette's, the rest, as the medical community promised, have either outgrown it, or symptoms significantly subsided) we still keep in touch. There are about 8 of our core group left ... and our volume of mail have dropped to about 25 emails a month. Between all 8 of us.
However ...nothing in life seems *real* until I have told them. And or blogged about it.
So ...since I have not told TSBS about Samuel's graduation ...and I have not blogged about it ... it's not real ... right?
*grin*
I've seriously planned on blogging. Really ... I need to. My son graduated from high school. That is worthy of a blog post. It begs of a blog post.
I freak out everytime I go to blog about it!!
Between that ..and the fact that it's been 25 years since I graduated ... I'm feeling just a bit ... um er ..uh ..er ...middle aged!! Ok, so I am, but that *IS* beside the point.
I have an email list of friends that I've had since I joined the WWW in 1998. It is nicknamed TSBS (tourette's syndrome and yes, the BS is exactly that) It is a small group and we are very tight nit. When our children were little, we clung to each other like a spider web. We were each other's life line, sanity, and survival ... we've seen each other through marriage, divorce, affairs, illnesses, deaths of parents, the near deaths of a spouse (mine) and serious illnesses of parents and spouses. We have held each other's hands through IEP's, fights with neighbors, bosses, job losses and life changes ... through it all ... we've been there. For several years, we did a christmas ornament exchange, those, are treasures beyond belief!
We, for several years, just the 15 of us, kept a volume of emails in our group of about 250 emails a day.
As our children have grown and life has settled for most of us (2 of the children still have SIGNIFICANT Tourette's, the rest, as the medical community promised, have either outgrown it, or symptoms significantly subsided) we still keep in touch. There are about 8 of our core group left ... and our volume of mail have dropped to about 25 emails a month. Between all 8 of us.
However ...nothing in life seems *real* until I have told them. And or blogged about it.
So ...since I have not told TSBS about Samuel's graduation ...and I have not blogged about it ... it's not real ... right?
*grin*
Thursday, May 08, 2008
Query Opinions ... weighy issues.. ..confusion
I was scanning my email box and weeding out the spam ... I do that a few times a day. I almost deleted the email without reading it.
I didn't recognise the return address.
The subject line didn't catch my attention.
I just about hit the delete ..but something made me decide to look at it.
A stranger. No one in particular. Approaching me, because they'd been given my email address, but they didn't say who gave it to them. They wanted my opinion, advice even ... and I'm sitting here wondering what to tell them.
A few years ago ...I was rather firm on my response.
They were diagnosed with Myasthenia Gravis .... and they want to know if they should have a thymectomy.
What bothers me ...is they didn't say in their email if their doctor's are recommending it. They haven't said if the CT scan or MRI has said it's enlarged or if there is a thymoma (if thymoma is there, the it is a given, get the sucker out).
The enlargement may not even be obvious until it's out ...and even if it is enlarged, does that really *MEAN* anything?
They didn't say if they found me through the blog ...through the MG foundation ...our local MG chapter, my doctor (who has my permission to refer patients who are worried)
They just want to know ... I have Myasthenia Gravis and should I have my thymus gland removed ...and what technique should I 'insist' the doctor's use?
Well, first, it sounds to me like they've already decided to have it, they just don't know if they want transternal (the method I had) or cervical.
I've also read of a new method, that I wouldn't dare blog about because I only read about it once ... something about going in the side of the ribs. It sounded like a dream to me. Oh if only that had been an option for me 16 years ago!
WOW!! I just realized, June 2 will be 16 years since my Thymectomy. Medical science has changed dramatically since then. I went into the hospital with them telling me I had a 60% chance of remission ... by the time I came out of the hospital 10 days later, the study that was expected was released ... 60% was still on the page ... 60% of patients who have a thymectomy with in the first year of onset in the disease can expect to see 'some improvement in symptoms' ... a far cry from 60% chance of remission.
Those who'd been sick for over 2 years at the time of diagnosis (like me) really didn't have much expectation for help. In other words, had the study been released just 3 weeks earlier ... the surgery would not have been recommended for me.
My thymus was enlarged ... significantly so. What that meant for me, I never have learned. I figured, it was just as well that I got it out anyway.
I then, spent the next 10 to 13 years saying that I would do WHATEVER it took to put me into remission ... EVEN IF IT FAILED.
I would recommend the thymectomy ...and DID to many who asked my opinion when their doctor's flat out insisted and they were terrified.
I would tell them that all I could think about was the 'what if it was the one thing I could have done, and didn't do .... it was worth it'
But now ... 16 years later ... research isn't holding fast the recommendation. There really needs to be hard fast proof for a call for that thymectomy. That "what if I'm the small % that gets lucky" isn't quite enough for such a drastic surgery (especially a transternal surgery! They cut your chest wide open for crying out loud!!)
Am I just getting older and understanding risks more?
Am I just getting more pain and because of the surgery ... I've got a significant case of chostochondritis ... where the wires are, and the scar tissue ... it HURTS when the rain comes. When the lupus flares ... the chest wall is a significant sourse of pain for me. Breathing often causes pain when breathing should come as natural as ...well ... breathing!
Is my questioning the 'go for it just in case!' ability to fight this monster (MG) because I've realized that the thymus gland isn't part of the MG monster ... or is it that the risk comes with a monster of it's own down the road?
What do I tell this person who wants my opinion with not enough info for me to form an opinion!
If it were me ...today ... and I didn't know what I know now ..what would I do (assuming I still had my thymus and they wanted to take it)
I also ... was told, and I have *NO IDEA IF IT IS TRUE* that those with no thymus ..cannot have bone marrow transplants ... yet ...in recent months and years ... you read the national research ...bone marrow transplants for autoimmune diseases for lupus and myasthenia gravis .... will I be excluded because I had a treatment that didn't work.
If, that is true ..the patient has no enlarged thymus, and no thymoma ... I'm afraid my answer would be a resounding no. If bone marrow transplants are ever in our futre, do not ruin your choices for future treatments that may act as a cure or life saving tactic.
I guess, I should go do some research to back up my contemplation. After my son graduates.
Between now and then ...this is purely from memory and off the top of my head!!!
I didn't recognise the return address.
The subject line didn't catch my attention.
I just about hit the delete ..but something made me decide to look at it.
A stranger. No one in particular. Approaching me, because they'd been given my email address, but they didn't say who gave it to them. They wanted my opinion, advice even ... and I'm sitting here wondering what to tell them.
A few years ago ...I was rather firm on my response.
They were diagnosed with Myasthenia Gravis .... and they want to know if they should have a thymectomy.
What bothers me ...is they didn't say in their email if their doctor's are recommending it. They haven't said if the CT scan or MRI has said it's enlarged or if there is a thymoma (if thymoma is there, the it is a given, get the sucker out).
The enlargement may not even be obvious until it's out ...and even if it is enlarged, does that really *MEAN* anything?
They didn't say if they found me through the blog ...through the MG foundation ...our local MG chapter, my doctor (who has my permission to refer patients who are worried)
They just want to know ... I have Myasthenia Gravis and should I have my thymus gland removed ...and what technique should I 'insist' the doctor's use?
Well, first, it sounds to me like they've already decided to have it, they just don't know if they want transternal (the method I had) or cervical.
I've also read of a new method, that I wouldn't dare blog about because I only read about it once ... something about going in the side of the ribs. It sounded like a dream to me. Oh if only that had been an option for me 16 years ago!
WOW!! I just realized, June 2 will be 16 years since my Thymectomy. Medical science has changed dramatically since then. I went into the hospital with them telling me I had a 60% chance of remission ... by the time I came out of the hospital 10 days later, the study that was expected was released ... 60% was still on the page ... 60% of patients who have a thymectomy with in the first year of onset in the disease can expect to see 'some improvement in symptoms' ... a far cry from 60% chance of remission.
Those who'd been sick for over 2 years at the time of diagnosis (like me) really didn't have much expectation for help. In other words, had the study been released just 3 weeks earlier ... the surgery would not have been recommended for me.
My thymus was enlarged ... significantly so. What that meant for me, I never have learned. I figured, it was just as well that I got it out anyway.
I then, spent the next 10 to 13 years saying that I would do WHATEVER it took to put me into remission ... EVEN IF IT FAILED.
I would recommend the thymectomy ...and DID to many who asked my opinion when their doctor's flat out insisted and they were terrified.
I would tell them that all I could think about was the 'what if it was the one thing I could have done, and didn't do .... it was worth it'
But now ... 16 years later ... research isn't holding fast the recommendation. There really needs to be hard fast proof for a call for that thymectomy. That "what if I'm the small % that gets lucky" isn't quite enough for such a drastic surgery (especially a transternal surgery! They cut your chest wide open for crying out loud!!)
Am I just getting older and understanding risks more?
Am I just getting more pain and because of the surgery ... I've got a significant case of chostochondritis ... where the wires are, and the scar tissue ... it HURTS when the rain comes. When the lupus flares ... the chest wall is a significant sourse of pain for me. Breathing often causes pain when breathing should come as natural as ...well ... breathing!
Is my questioning the 'go for it just in case!' ability to fight this monster (MG) because I've realized that the thymus gland isn't part of the MG monster ... or is it that the risk comes with a monster of it's own down the road?
What do I tell this person who wants my opinion with not enough info for me to form an opinion!
If it were me ...today ... and I didn't know what I know now ..what would I do (assuming I still had my thymus and they wanted to take it)
I also ... was told, and I have *NO IDEA IF IT IS TRUE* that those with no thymus ..cannot have bone marrow transplants ... yet ...in recent months and years ... you read the national research ...bone marrow transplants for autoimmune diseases for lupus and myasthenia gravis .... will I be excluded because I had a treatment that didn't work.
If, that is true ..the patient has no enlarged thymus, and no thymoma ... I'm afraid my answer would be a resounding no. If bone marrow transplants are ever in our futre, do not ruin your choices for future treatments that may act as a cure or life saving tactic.
I guess, I should go do some research to back up my contemplation. After my son graduates.
Between now and then ...this is purely from memory and off the top of my head!!!
Monday, May 05, 2008
I am WOMAN ... Come walk with me!
I posted about this, and will post again ... On May 11 many women across the nation are going to be making steps ... one step at a time ... or many steps together to get themselves healthier ...
In the Woman Challenge to walk virtually across the country to a better health.
http://www.womenshealth.gov/woman/mypage.cfm
It isn't about being skinny, or some crazy weight loss phase ... but about living longer ... having healthier joints ... and about living to see our grandchildren graduate from high school and seeing their children being born and graduate from high school!
This week ... My mother has a birthday ...and my son graduates from high school and I celebrate 25 years from my high school graduation ... but my body is incredibly unhealthy.
I've spent the day feeling like firecrackers have been set off in every joint and every muscle group.
While it has little to do with being out of shape and everything to do with an immune system gone haywire ... . being IN shape is my only real recourse to survive those fireworks.
I do know that I worked out 3 times this last week ...and if I had not ... I'd have been bedridden with those fireworks ... instead of just in pain.
Tomorrows work out, if the fireworks continue, will be limited, but it will take place .... and it will keep the flare that is happening from getting worse than it could. OR at least, that's my theaory.
I have many many blogbuddy's ... and many many real buddy's who read my blog ...
So, I challenge you women ...and you, who love women ... Join with me ... starting MAY 11 ...
Let us Blog Buddies ... make a group to Virtually track across the country ... and Bust those bodies that often fail us ... if you have a healthy body ... keep it that way and make it even healthier ...
If it's not healthy and like mine ... it's fighting lupus, myasthenia gravis ... or you have to fight some other chronic monster like Multiple Sclerosis or Rheumatoid Arhtritis, Fibromyalgia, Asthma, Cancer, recovering from Cancer, Elnors-Danlos Syndrome, Multiple Connective Tissue Syndrome, Any number of cancer, Alzheimers ... or you've lost a loved one to any of those diseases ... Join me on May 11 to get fit ...and get healthy ... get up and moving ... Join me ... and register to my Group Blog Buddy Body Busters at
http://www.womenshealth.gov/woman/myTeam.cfm#progress
Here is the route we'll be taking :
http://www.womenshealth.gov/woman/myTeam.cfm
Join in and then email me at Pearlsofaneagle@aol.com and let me know you've joined!! Keep your progress logged in ...and let's keep each other encouraged!!!
Personally, I'm dedicating my trip to my dear friend's dauther who passed away from Brain Cancer ... Kylie Bug, this is for you!
I know you're not supposed to put your number on the web, but ... I'm going to do it anyway ... if you have any questions
My number is 918 833 1552
In the Woman Challenge to walk virtually across the country to a better health.
http://www.womenshealth.gov/woman/mypage.cfm
It isn't about being skinny, or some crazy weight loss phase ... but about living longer ... having healthier joints ... and about living to see our grandchildren graduate from high school and seeing their children being born and graduate from high school!
This week ... My mother has a birthday ...and my son graduates from high school and I celebrate 25 years from my high school graduation ... but my body is incredibly unhealthy.
I've spent the day feeling like firecrackers have been set off in every joint and every muscle group.
While it has little to do with being out of shape and everything to do with an immune system gone haywire ... . being IN shape is my only real recourse to survive those fireworks.
I do know that I worked out 3 times this last week ...and if I had not ... I'd have been bedridden with those fireworks ... instead of just in pain.
Tomorrows work out, if the fireworks continue, will be limited, but it will take place .... and it will keep the flare that is happening from getting worse than it could. OR at least, that's my theaory.
I have many many blogbuddy's ... and many many real buddy's who read my blog ...
So, I challenge you women ...and you, who love women ... Join with me ... starting MAY 11 ...
Let us Blog Buddies ... make a group to Virtually track across the country ... and Bust those bodies that often fail us ... if you have a healthy body ... keep it that way and make it even healthier ...
If it's not healthy and like mine ... it's fighting lupus, myasthenia gravis ... or you have to fight some other chronic monster like Multiple Sclerosis or Rheumatoid Arhtritis, Fibromyalgia, Asthma, Cancer, recovering from Cancer, Elnors-Danlos Syndrome, Multiple Connective Tissue Syndrome, Any number of cancer, Alzheimers ... or you've lost a loved one to any of those diseases ... Join me on May 11 to get fit ...and get healthy ... get up and moving ... Join me ... and register to my Group Blog Buddy Body Busters at
http://www.womenshealth.gov/woman/myTeam.cfm#progress
Here is the route we'll be taking :
http://www.womenshealth.gov/woman/myTeam.cfm
Join in and then email me at Pearlsofaneagle@aol.com and let me know you've joined!! Keep your progress logged in ...and let's keep each other encouraged!!!
Personally, I'm dedicating my trip to my dear friend's dauther who passed away from Brain Cancer ... Kylie Bug, this is for you!
I know you're not supposed to put your number on the web, but ... I'm going to do it anyway ... if you have any questions
My number is 918 833 1552
Sunday, May 04, 2008
facial recognition
Insomnia setting in here ...
I came across this interesting test ... Being one who has trouble even being able to give a description of my loved ones ... a sister, brother, my own CHILDREN ... I found this test facinating ...
Results
--------------------------------------------------------------------------------
Out of 72 faces, you correctly identified 39.
In other words, you got 54% correct.
--------------------------------------------------------------------------------
On our previous version of this test, the average person with normal face recognition was able to recognize about 80% of the faces. If you correctly identified less than 65% of the faces, this may indicate face recognition difficulties.
For more information about face blindness and other face recognition difficulties, please go to http://www.faceblind.org/.
ok, so they think I might have difficulties ...heh? yeah, I knew that. Always have had. From childhood. I have no clue what causes it.
It will be interesting as I go through school in psychology to see if I can improve on it, or find better ways to cope with it ... I will definitely need to find ways to cope with it. 0.O
Hat tip to Menapausal Moments for the confirmation of my facial recognition issues ;)
At least I know they're real!!
on the famous persons test I got :
Results
Out of 30 faces, you correctly identified 14.You were familiar with 29 of the people in this test.If we exclude the ones you were unfamiliar with, you got 48% correct.
On our previous version of this test, the average person with normal face recognition was able to recognize about 85% of the faces they were familiar with. If you missed more than half of the faces you were familiar with, this may indicate face recognition difficulties. For more information about face blindness and other face recognition difficulties, please go to www.faceblind.org.
I came across this interesting test ... Being one who has trouble even being able to give a description of my loved ones ... a sister, brother, my own CHILDREN ... I found this test facinating ...
Results
--------------------------------------------------------------------------------
Out of 72 faces, you correctly identified 39.
In other words, you got 54% correct.
--------------------------------------------------------------------------------
On our previous version of this test, the average person with normal face recognition was able to recognize about 80% of the faces. If you correctly identified less than 65% of the faces, this may indicate face recognition difficulties.
For more information about face blindness and other face recognition difficulties, please go to http://www.faceblind.org/.
ok, so they think I might have difficulties ...heh? yeah, I knew that. Always have had. From childhood. I have no clue what causes it.
It will be interesting as I go through school in psychology to see if I can improve on it, or find better ways to cope with it ... I will definitely need to find ways to cope with it. 0.O
Hat tip to Menapausal Moments for the confirmation of my facial recognition issues ;)
At least I know they're real!!
on the famous persons test I got :
Results
Out of 30 faces, you correctly identified 14.You were familiar with 29 of the people in this test.If we exclude the ones you were unfamiliar with, you got 48% correct.
On our previous version of this test, the average person with normal face recognition was able to recognize about 85% of the faces they were familiar with. If you missed more than half of the faces you were familiar with, this may indicate face recognition difficulties. For more information about face blindness and other face recognition difficulties, please go to www.faceblind.org.
Thursday, May 01, 2008
:/
I think ... I have an ulcer.
or ... I think it might be endometriosis ...
or worse ...both.
I'm stalling something awful on going and finding out.
I don't want to know for sure.
My ability to be upbeat and be a 'good patient' is wearing very thin.
Very very thin.
or ... I think it might be endometriosis ...
or worse ...both.
I'm stalling something awful on going and finding out.
I don't want to know for sure.
My ability to be upbeat and be a 'good patient' is wearing very thin.
Very very thin.
Tuesday, April 29, 2008
Challenge!
Come and join me in this challenge!
Let's get fit together. My groups is a cross country track .. "Blog Buddy Body Busters"
Go join my group and starting May 11th, log in the amount of getting fit that you do and we'll track our results together and see ourselves 'walk' across the country together as blog buddies!
If your goal is to get fit, loose weight, become more mobile because of chronic illness (arthritis is a bugger, but movement makes it less so! trust me on this one!) Get up and move, start with where you are, at your fitness level ...and lets get fit together!!
Monday, April 28, 2008
Held
"Natalie Grant - Held"
Two months is too little
They let him go
They had no sudden healing
To think that providence would
Take a child from his mother while she prays
Is appalling
Who told us we’d be rescued?
What has changed and why should we be saved from nightmares?
We’re asking why this happens
To us who have died to live?
It’s unfair
Chorus:
This is what it means to be held
How it feels when the sacred is torn from your life
And you survive
This is what it is to be loved
And to know that the promise was
When everything fell we’d be held
This hand is bitterness
We want to taste it, let the hatred NUMB our sorrow
The wise hands opens slowly to lilies of the valley and tomorrow
(Chorus) ...
This is what it means to be held
How it feels when the sacred is torn from your life
And you survive
This is what it is to be loved
And to know that the promise was
When everything fell we’d be held
Bridge:
If hope is born of suffering
If this is only the beginning
Can we not wait for one hour watching for our Savior?
(Chorus)
This is what it means to be held
How it feels when the sacred is torn from your life
And you survive
This is what it is to be loved
And to know that the promise was
When everything fell we’d be held
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Kylie Jade Kesterson
You'll never be forgotten KylieBug
Never Forget
It's been a year since my friends daughter went to be with Jesus ...
Her mother wrote a beautiful tribute to her at this memorial site.
I don't know how she has managed. But, she has, and beautifully so. Kylie would be so proud of her mother.
http://kyliekesterson.memory-of.com/About.aspx
Her mother wrote a beautiful tribute to her at this memorial site.
I don't know how she has managed. But, she has, and beautifully so. Kylie would be so proud of her mother.
http://kyliekesterson.memory-of.com/About.aspx
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