tag:blogger.com,1999:blog-8988655.post766674570443531884..comments2023-10-17T07:34:35.780-05:00Comments on Pearls and Dreams: Paradoxical LivingDreaming againhttp://www.blogger.com/profile/15717590226520457326noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8988655.post-44892054267277258892008-04-13T23:35:00.000-05:002008-04-13T23:35:00.000-05:00Hi! I also have MG. I am 72 yrs old. I went thro...Hi! I also have MG. I am 72 yrs old. I went through some horrendous times before I finally got some help. I thought for sure I was looking at a feeding tube. Had problems speaking and all the rest you are familiar with. Like hitching up my pants or lifting my arms over my head. My family dr was positive I had had a stroke. The usual tests for this were negative.(good news)I was finally diagnosed with the tensilon test in Aug of 03. My nuero immediately put me on mestinon.(always the first med for mg). It helped me but still left me having difficulty eating etc and still restrictions in my arms etc. And of course the always weakness and fatigue. I had 12 IVIG's which did not help. He has always wanted to put me on prednisone but I have resisted. Finally he put me on azathiaprine(Imuran) and it has been a great help.Requires constant monitoring of my liver and cell counts every few weeks. My overall strength has increased a lot and my chewing and eating is nearly normal. Well most of the time anyway. There are still those occasionaly mad dashes to the bathroom while trying to eat. I Hope you get some help and relief. This disease is also depressing at times. Just wanted to pass along some of how I was treated and what helped some and what didn't. People just don't understand what mg does to us. We could write a book on all the little day to day things that result from this disease. Well- as usual I tend to go on and on. hugs.Garychttps://www.blogger.com/profile/13934011256387596677noreply@blogger.comtag:blogger.com,1999:blog-8988655.post-84379069477016818732008-03-30T20:56:00.000-05:002008-03-30T20:56:00.000-05:00I had such high expectations for myself when I was...I had such high expectations for myself when I was younger. They were all torn apart. It happens. After my life was ripped to shreds, I am building a new one.<BR/><BR/>I have missed your entries! I'm glad you updated. :)Emilyhttps://www.blogger.com/profile/10348441450034813129noreply@blogger.comtag:blogger.com,1999:blog-8988655.post-85241547319998682672008-03-29T01:48:00.000-05:002008-03-29T01:48:00.000-05:00maybe its best not have expectations in life- life...maybe its best not have expectations in life- life seems to have its ownRainehttps://www.blogger.com/profile/17088907661394233572noreply@blogger.comtag:blogger.com,1999:blog-8988655.post-22165568670588676972008-03-28T18:08:00.000-05:002008-03-28T18:08:00.000-05:00wow--sounds like you've gone through SO much in th...wow--sounds like you've gone through SO much in those years. makes my junk from the last 16 years seem like nothing compared to what you've gone through. May God Bless your life fully my friend--LindaLindahttps://www.blogger.com/profile/04877964283544393692noreply@blogger.com